I have to look at a calender now when I try to count up the weeks that have passed since Ella's last seizure. It will be seven weeks tomorrow, if you were wondering. She is down to two medicines, and in four weeks or so will be down to just one. We're also working on getting her discharged from home health, since she is no longer on the steroids.
In development news, she continues to be in constant motion, trying new tricks all the time. Ella had a PT session on Monday, and before it began I told the therapist, "She is gonna knock your socks off." And she did not make me out to be a liar. The therapist couldn't believe the progress that Ella had made in the two weeks that had passed since she'd last seen her. So proud of my babe!
I'd been meaning to do this since the last appointment, but on Monday afternoon I got her an exercise ball (to encourage strengthening of her core muscles.) I think she really enjoys it up there. I'd love to share photographic proof of her delight, but as you might imagine my hands are incredibly full during that time.
But, I would like to offer the following in an attempt to satisfy any picture cravings you might have.
Thanks for checking in!
Wednesday, August 12, 2009
I've lost count
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Yea!! We love photos! Keep them coming!
ReplyDeleteGod is awesome. :)
ReplyDeletePraise the Lord! It's so encouraging to read that you've lost count! May God continue to do this!!!
ReplyDeleteThanks for such sweet comments, gals!
ReplyDeleteI am so glad to hear of her awesome progress!! I am a little behind, my husband had to redo our computer, and lost all my favorites I had marked, so I just found you again.
ReplyDeleteI would like to know more about the exercise ball....if Talan would benefit even if he still doesn't have much head control (although it is getting better). Also wondering what all home health did for you...I have had several people mention to me that I should try to get it, but don't know if it would really benefit me or not...he is in a developmental daycare now, so I don't have him that many hrs per day.
Sorry to flood your comment about my own baby, I am really happy to hear how great yall are doing!
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ReplyDeleteHi, My son also was diagnosed with bilateral frontal PMG(left side more severely affected) about 3 weeks ago and he developed seizures including IS(he has different types of seizures at the same time, the doctor said). I was on the internet to find other children with PMG, and stumbled on your blog.
ReplyDeleteIt is very encouraging to see your daughter's seizures are gone. With Vigabatrin(I am sure you've heard of it), my son is getting much better(he has been on the drug for about a week now).
I wish your family all the best.
Jay(I am the mom, by the way:-)