Thursday, December 24, 2009

A quick update--Mildred and Ella


My grandma Mildred passed away on Tuesday evening, the 22nd. Therefore, we will be traveling for this holiday weekend after all. I'm in the throes of packing and organizing, so I haven't really begun to process what this loss means to me; I will save the bulk of what I'd like to write about her for another day. I am sad, and I will miss her greatly, but more than anything else I'm just so thankful that she has been such a huge part of my life.

Ella's EEG yesterday did not accomplish what we had hoped. During the four hours, we did not observe any facial movements or other overt seizure-like activity. I'm actually not sure what is next for her at this point (and the clinic is now closed until Monday, so we won't know anything until then). On the one hand it's good that she isn't having anything frequent, but on the other hand she is having SOMEthing going on that we will eventually need to see on EEG in order to know how to treat it. So, she may still need to go back to Arkansas Children's Hospital to be monitored on the video-EEG there.

Just as I was typing this, Ella pushed up to sitting all by herself!! I celebrated like crazy with her, and she starting jigging and jiving knowing that she had done something good. In the face of great adversity, she continues to blow me away with her amazing progress.

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