Tuesday, November 8, 2011

The beginnings of confirmation and a plan going forward

I think this is our 5th day in the hospital. Time is passing sowly and the days are running together a bit, but Ella has handled being cooped up really well, which is a blessing.

Dr. Luat came to see us this morning with printouts of the EEG from before, during, and after Ella's seizure yesterday. She said that everything she sees indicates that the seizure started on the left side and generalized to both sides shortly after. Then when the seizure was over, there continued to be abnormal spikes on the left side for a while. This correlates with what the PET scan showed--a likely left-sided brain abnormality--which is what we were hoping for because it means that surgery could help her.
The doctor would like to capture at least one more seizure if not two because then we can see a pattern and know for sure that this is typically what her brain does, rather than being an exception to the rule.

It seems we will be here at least one more day to give Ella time to have more seizures. My mom continues to be here with us, which is a huge help since one of us has to stay in the room with her at all times. It is an active job to make sure she doesn't get tangled in her wires or accidentally pull her leads off, let me tell you.

That's what we know so far. Thank you for keeping up with us and for your thoughts and prayers. We miss our boys at home, but I'm glad we're getting some useful information and making the trip worthwhile.

blog comments powered by Disqus