Ella Update

It was brought to my attention that some might want to follow Ella's progress while in the hospital here (instead of just on Facebook). I have copied my last several status updates so those who want to can be brought up to speed. And going forward, I will do better about posting in both places.


Friday Evening

We made it to Childrens. Ella's all hooked up to the EEG; the actual hook-up was not her favorite thing. The doctor asked us to keep her up until now because sleep deprivation may help trigger seizures. No news yet.

Also, in this huge hospital the chances are crazy slim but we are actually 2 doors down from Stella! We got to see her smiling during a blessed visit from her brother Davis. She is precious.


Saturday morning

Good morning! We're up bright and early today--again because of the doctor's orders. No seizures upon waking. Next opportunity will be nap time probably. Ella is missing her second straight dose of medicines this morning. Perhaps we'll start to see something soon.


Saturday evening

No seizures today. Still just waiting. Ella had a pretty good day. She's handled being tethered to the wires with considerable charm and has been mostly pleasant all day. She got to see her daddy, papa, and brothers on skype, which she loved. We have to keep her up late again tonight. I hope we capture some useful information tomorrow.


Sunday Morning

No seizure again this morning. The attending was just here. She wants the EEG tech to try some flashing lights and have Ella blow on a pinwheel, hoping to trigger some activity. Today begins the third day without medication.


Sunday Evening

Not trying to be a broken record, but still no seizures for Ella. She continues to be a pleasant little girl though and has been running circles around the room.

I went out today for wifi access (children's has the app store blocked) and got some new free apps for mom's iPad so that Ella has a variety of games. Ella is blowing me away with how quickly she is picking up how to use it and what the different games require of her.

Pray we get seizures recorded soon. We are looking forward to being back home.

Speaking of which, Stella got to go home today. Pray for her increasing strength and all her upcoming treatments.


Monday Midday

We are set to stay until at least tomorrow at this point, since there's been no seizures. Dr. L wants to take advantage of this test since we've come all this way and gone to all this trouble, so she thinks we should keep trying. I'm glad that we aren't settling for nothing, but my heart has turned toward home, which makes staying here difficult at the same time.

Ella maintains her pleasant & playful disposition, and I'm very grateful for that.

Odds are in our favor that a seizure should happen soon. Her last one was last Wednesday, and they average around twice a week in frequency.

If you see them, hug my boys for me. I'm missing them like crazy.

♦